Three is the Magic Number
Beep, beep, beep, beep. I roll over blurry eyed and stretch out an arm to snooze my morning alarm before work. After some feeling around in the dark I realise it's not my iphone waking me up and it's only 3am. I turn over & Kayli isn't in the bed beside me. A lighter sleeper than myself, she's already in Oli's room turning off the alarm. This time around he's managed to pull the face mask off his ventilator that he sleeps with through night. It's a CPAP machine that helps regulate his breathing while he sleeps. Other nights it can be a problem with his feeding machine; he's knocked it over, there's a kink in the tube or it's out of battery. We give a machine feed which runs constantly & slowly through the night. Pumping a liquid based feed into his gastrostomy tube while he sleeps. Seeing Oliver hooked up to several machines through the night was unnerving to begin with. It leaves you on edge knowing that you're relying on everythin...
